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Kim
Valinor
Jul 6 2015, 6:06am
Post #51 of 74
(2003 views)
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*checks watch* we're still waiting. Pics, or it didn't happen.
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Starling
Half-elven
Jul 6 2015, 7:19am
Post #52 of 74
(2000 views)
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I'm not in any pics, so it can't be true. 
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cats16
Half-elven
Jul 6 2015, 8:17am
Post #53 of 74
(1991 views)
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...all good things come in time. 
But yes, I will upload what I can, soon.
Join us every weekend in the Hobbit movie forum for this week's CHOW (Chapter of the Week) discussion!
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cats16
Half-elven
Jul 6 2015, 8:18am
Post #54 of 74
(1988 views)
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In lieu of pictures of Starling...
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...I have many more of Picton than I had originally planned to take.
Those blasted ferries.
Join us every weekend in the Hobbit movie forum for this week's CHOW (Chapter of the Week) discussion!
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Patty
Immortal
Jul 6 2015, 2:53pm
Post #55 of 74
(1973 views)
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Even though it is Monday? 
Permanent address: Into the West
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entmaiden
Forum Admin
/ Moderator
Jul 6 2015, 4:11pm
Post #56 of 74
(1971 views)
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Look!
http://www.driehausmuseum.org/dressing_downton
I thought of you when this was announced. Come visit me!
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Brethil
Half-elven
Jul 7 2015, 10:50pm
Post #57 of 74
(1945 views)
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Lovely bird. I've only ever seen them in Florida (Disney to be exact).
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One reason I put viburnums in was that their berries attract such beauties. I am holding out hope that some of them will find me one summer.
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Patty
Immortal
Jul 8 2015, 8:26am
Post #59 of 74
(1936 views)
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I know those costumes are lovely!
I remember fondly the meeting Mr. Patty and I had with you and Gramma. Would love to come visit.
I don't know that I'll make it though. Been having some Patty Woes at the old homestead. My youngest son has just been diagnosed with epilepsy (pray he grows out of it, I understand many do ) and my son has just lost his job of maybe 10 years, due to a decision to make all the positions in his area full time. As you'll remember he is autistic, and in his particular case he is highly unsuited to working a full day. We are just about to begin the process of trying to find him another suitable job, which, again, in his case is not going to be easy. He's only in his 30’s...he NEEDS to work. So we are working through that as well as trying to replace his respite care people.
Always something, innit?
But if you go, please take pictures, if that's allowed.
Hope to meet up with you again in the future, though. But we don't get to Chicago often anymore since my mother in law passed away several years ago.
Enjoy the exhibit for me!
Permanent address: Into the West
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Annael
Immortal
Jul 8 2015, 2:47pm
Post #60 of 74
(1922 views)
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holding the prayer for the best possible outcomes for both your sons.
I am a dreamer of words, of written words. I think I am reading; a word stops me. I leave the page. The syllables of the words begin to move around … The words take on other meanings as if they had the right to be young.
-- Gaston Bachelard
* * * * * * * * * *
NARF and member of Deplorable Cultus since 1967
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Brethil
Half-elven
Jul 8 2015, 3:44pm
Post #61 of 74
(1918 views)
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A lot to cope with Patty. Sending thoughts your way, and to your boys, //
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dernwyn
Forum Admin
/ Moderator
Jul 8 2015, 4:00pm
Post #62 of 74
(1913 views)
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I hope they can quickly work out the best meds for your youngest, hopefully that's all that's needed! (Hubby has had petit mal since childhood, but he's regularly monitored to make sure the meds are doing what they should, and he's never had any problems.)
That is so disturbing about you son's job, I wish they could have made an exception for him! Sending thoughts & prayers that something "even better" will come his way.
*Hugs*!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"I desired dragons with a profound desire"
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Patty
Immortal
Jul 8 2015, 4:08pm
Post #63 of 74
(1912 views)
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I see Siri left off the word "grand"
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It's my grandson that has epilepsy. He has had 3 grand mal seizures in the past couple of months. They have put him on an anti seizure med that is not itself without ugly side effects, so we pray he will be able to get off of it soon.
I have only the one son, but my grandkids are all through my daughter.
I don't know how Siri left off the word "grand" but it appears it is hard to get good help nowadays!
Thanks for all the good wishes. We are hanging in there, just like everyone else. We've all got woes, I know.
Permanent address: Into the West
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Patty
Immortal
Jul 8 2015, 4:14pm
Post #64 of 74
(1911 views)
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I think that's what it's called, and they have given him some liquid Valium to be, uh, inserted in case he has a breakthrough seizure. So far, this seems to be holding him, but we'd like him off the Zeppra. Glad your hubby's meds are holding him. Scary. Really scary.
Thanks for the hugs.
Permanent address: Into the West
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Patty
Immortal
Jul 8 2015, 4:15pm
Post #65 of 74
(1907 views)
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Permanent address: Into the West
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dernwyn
Forum Admin
/ Moderator
Jul 8 2015, 4:23pm
Post #66 of 74
(1907 views)
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Petit mal seizures are mostly nuisances; but grand mal can be frightening! I hope they can at least decrease the dosage, or use a different med. The poor kid (and the rest of the family)! 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"I desired dragons with a profound desire"
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Patty
Immortal
Jul 8 2015, 4:35pm
Post #67 of 74
(1907 views)
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Yes. He is 4, so I'm really hoping he'll grow out of them...
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I didn't witness them, but I have to admit I'm now kind of reluctant to keep him for my daughter. That will really put a stress on her, but I admit that it's a fact. When she had to give him that Valium she had to have someone with her to hold him down as he shook. I'm afraid he'll injure his tongue. When I worked on Peds back in the old days they used to have bite blocks, but I guess they don't do that anymore, my daughter said.
Permanent address: Into the West
(This post was edited by Patty on Jul 8 2015, 4:45pm)
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Starling
Half-elven
Jul 8 2015, 8:33pm
Post #68 of 74
(1893 views)
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Patty, if it is any consolation
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I have seen hundreds of tonic clonic seizures and I have yet to see any tongue injuries. The most important thing is to keep the person safe from injury on floors, furniture etc, and to get them into the recovery position as soon as it is possible to do so.
Just from my own observations, it can take some time to figure out the right daily medication or combination of medications to keep seizures under control, or to at least reduce the frequency of the tonic clonic seizures. Hang in there, I know it is scary. Good communication and follow up with the involved medical professionals will be vital.
The children I work with who need medication to stop tonic clonic seizures don't have Stesolid (liquid Valium) anymore, as this has been phased out and they have all been moved onto Midazolam, which is administered via nose or mouth. As the person who has responsibility for giving the medication, I find it much easier and faster, and it also is a much more dignified alternative for the person having the seizure. I have no idea if this is an option in your grandson's case, but thought it was worth mentioning.
Is there an Epilepsy Association or similar where you live? These kinds of organisations can be really helpful when it comes to providing good factual and understandable information for families, as well as a listening ear and support.
I should also add that I am not a medical professional, but dealing with a range of seizures is part of my everyday work due to the needs of the children I work with.
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entmaiden
Forum Admin
/ Moderator
Jul 8 2015, 8:56pm
Post #69 of 74
(1888 views)
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Bad things always seem to happen in bunches, don't they? I hope everything works out OK.
Note that the exhibit does not start until February 2016 and runs through May 2016. Hope things turn around for you, and you can come for a visit.
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Brethil
Half-elven
Jul 8 2015, 10:28pm
Post #70 of 74
(1880 views)
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I deal with many seizures at work, though I no longer take care of peds. The best combo of meds is out there, its very different for everyone but they will find it. In some cases they will do an EEG monitored study over a few days to determine origin location which can affect medication choices. And indeed some children do leave them behind as they grow.
Your daughter is right, we stock bite blocks in the ICU but we only use them for intubated patients to protect the artificial airway. I think the danger of impeding breathing outweighs the tongue injury risk. As Starling said, proper 'recovery' (preferred right or left side lying) positioning can help with that.
((((((((((((( Patty and boys))))))))))))))
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Dame Ioreth
Tol Eressea
Jul 9 2015, 1:02am
Post #71 of 74
(1872 views)
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The medication combo is out there but it sometimes takes time. The best thing a parent (or grandparent) can do is document breakthroughs and side effects accurately along with when you give the medication. The information will help the doctors pin down what is going on.
Make sure the pharmacist knows all the changes in meds too. Sometimes they are the last to know what is going on. The doctor will start new meds and not tell them to discontinue old meds, or they will add new meds and not give refills on the old leading them to think something has been discontinued.
The other thing the parents can do is get to know their insurance plan. If a med is not on the formulary, sometimes the insurance company will ask for a Prior Authorization before they will pay for anything. This requires extra input from the doctor regarding treatment choice. If parents know their plan well, (they usually have a website and a help line) this process can be sped up so that care isn't interrupted.
_
Heed WBA when building blanket forts.
ITLs don't get enough FAS. :)
Where there's life there's hope, and need of vittles.
― J.R.R. Tolkien, The Lord of the Rings
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Brethil
Half-elven
Jul 9 2015, 1:09am
Post #72 of 74
(1869 views)
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Keppra - we use it a lot in my setting.
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Trade name levitiracetam. Often is used in acute cases, and the neurosurgeons like it postop. It is quite a reliable and somewhat newer medication, though individual response varies. They all have side effects - everything does! - but he may need it for a while and if its helping, it may help for a good period of time.
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Patty
Immortal
Jul 9 2015, 1:07pm
Post #73 of 74
(1804 views)
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Guys, thanks for all the helpful advice and information!
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We humans are always dealing with some kind of woes or other and it really helps to have others with similar problems tell how they are handling them or share their knowledge. At my age I take a lot in stride that I probably wouldn't have been able to many years ago. I confess that a grandkid with seizures and the loss of a job for someone in their 30s who is difficult to place has had me on the less than cheery side. Along with all those memento mori reminders coming in the mail from AARP and Medicare! Ha, but there's always Poldark and Outlander! 
Permanent address: Into the West
(This post was edited by Patty on Jul 9 2015, 1:08pm)
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Annael
Immortal
Jul 9 2015, 3:32pm
Post #74 of 74
(1777 views)
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one of my closest friends has epilepsy
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He's 60 and has had a wonderful life, so it's "liveable-with." His is well controlled with medicine. But still it would be lovely if your grandson outgrew his, and so I pray.
I am a dreamer of words, of written words. I think I am reading; a word stops me. I leave the page. The syllables of the words begin to move around … The words take on other meanings as if they had the right to be young.
-- Gaston Bachelard
* * * * * * * * * *
NARF and member of Deplorable Cultus since 1967
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