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The One Ring Forums: Off Topic: Off Topic:
Balance Awareness Week for Vestibular Disorders.

DesiringDragons
Lorien


Sep 19 2012, 7:28pm

Post #1 of 11 (195 views)
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Balance Awareness Week for Vestibular Disorders. Can't Post

Besides being Hobbit Week, it's Balance Awareness Week: http://vestibular.org/BAW

I never knew such a thing existed, but since being diagnosed with Ménière's disease recently (which has kept me offline and away from TORn, and I only discovered TORn this summer! SO UNFAIR) I've developed a new appreciation for the workings of my inner ear.

As a friend of mine says, "hug a dizzy person today"!


zarabia
Tol Eressea


Sep 20 2012, 7:38am

Post #2 of 11 (81 views)
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Here's a hug from one dizzy person to another :) [In reply to] Can't Post

I'm fortunate in that mine is (hopefully) temporary and intermittent. Just a couple of weeks ago I developed an inner ear infection (labyrinthitis) which according to WebMD just has to go away on its own, but, in some cases, can cause permanent damage and therefore cause problems with vertigo at any time thereafter. Yay Crazy

Is there medication for Meniere's? or do you have to do like I'm doing - taking Meclizine temporarily when it's really bad, but otherwise letting the brain recalibrate sensory input between eyes and ears. Fun!

Hope you are able to get your Meniere's under control. My neighbor across the street has Meniere's too. She had a heck of a time for a few months, but is doing much better now. So hang in there! Smile




grammaboodawg
Immortal


Sep 20 2012, 10:34am

Post #3 of 11 (65 views)
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*hand shoots up* Topsy Turvy here! [In reply to] Can't Post

How cool to have a week devoted to dizzy people!! :D I've had an inner-ear/vision imbalance for nearly 20 years... and it is definitely interesting! Some mornings I sit up in bed and just keep falling right over. Once I was walking across the room and got hit so hard I dropped to the floor. Flashing lights (strobe/ bright sunlight through passing trees, etc) sets me off, looking from papers to computer screen a lot (which is my job)... can trigger episodes sometimes with nausea. The best way to describe it is the feeling you get you when spin around real fast and stop suddenly. Forget driving! Yeah... it's definitely a bother and a nuisance at times ;)




I really need these new films to take me back to, and not re-introduce me to, that magical world.



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Patty
Immortal


Sep 20 2012, 12:40pm

Post #4 of 11 (50 views)
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Hugs to all "dizzy" people. [In reply to] Can't Post

Another disorder/disease that I hope will be cured someday. It must make it nearly impossible to drive. I am dizziness because of my allergies this summer/fall, so I sympathize.

Permanent address: Into the West






elf_wannabee
Lorien

Sep 20 2012, 5:06pm

Post #5 of 11 (55 views)
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In 2009-2010, I suffered four bouts of vertigo . . . [In reply to] Can't Post

two of which were causes for hospitalization. During this same time--my left ear became totally deaf! Medication seems to have helped tho since I haven't had a recurrance in almost a year and a half. I've been to four theme parks and road several rollercoasters and they didn't exacerbate my vertigo symptoms so I think I'm cured. To all TORnsib vertigo sufferers you have my deepest sympathies and wishes for speedy recoveries!


DesiringDragons
Lorien


Sep 20 2012, 7:15pm

Post #6 of 11 (22 views)
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*hugs* [In reply to] Can't Post

I'm so sorry about the labyrinthitis and the vertigo. I really hope it doesn't cause permanent damage and goes away quickly! Inner/middle ear stuff is no fun to deal with.

My regular doctor put me on a steroid to reduce inflammation and then sent me to a specialist, who diagnosed me. I'm no longer on the medication but it did seem to help the bad bouts in the beginning. Now I'm mainly on a low-salt diet (which helps prevent fluid buildup in the inner ear, I guess?) and that seems to be helping. The ear specialist said there are medications he can try but he wants to see how I do with this first.

Thank you for the story about your neighbor - I am so glad to hear that she's doing better! The first few weeks seemed to be the worst for me, but things are (hopefully!) improving gradually. :)


DesiringDragons
Lorien


Sep 20 2012, 7:18pm

Post #7 of 11 (36 views)
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Oh my gosh, that sounds awful to deal with! [In reply to] Can't Post

I've only had two REALLY bad bouts with the falling over and vomiting - those were awful; it almost felt like being pushed! I'm hoping that my episodes don't recur quite that badly.

Is there anything that makes yours better? I hope there's something that gives you some relief.


DesiringDragons
Lorien


Sep 20 2012, 7:20pm

Post #8 of 11 (29 views)
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That sounds awful as well! [In reply to] Can't Post

*hugs* to you and to everyone who replied!

I can't drive during a bad bout of it - I can't even walk across the room without hitting a wall. Unsure But the good days have been increasing lately, and I seem to be fine on those. Luckily!


DesiringDragons
Lorien


Sep 20 2012, 7:24pm

Post #9 of 11 (56 views)
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I'm so sorry that you lost your hearing. [In reply to] Can't Post

I guess I'm at risk for losing mine as well (especially in my left ear), but I'm trying to hope that that won't happen.

Your vertigo must have been really awful to be hospitalized - I am so sorry. I am so glad to hear that you're doing much better and even riding roller coasters now!

Reading everyone's stories has made me feel less alone - thanks, you guys. Smile You are all so much braver than I am!!


Annael
Half-elven


Sep 21 2012, 1:08am

Post #10 of 11 (37 views)
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how strange to come here & read this post [In reply to] Can't Post

I went hiking today with my brothers and sister-in-law & some friends. Sis-in-law has been having trouble with nausea & other GI upsets for about six weeks; today she also started feeling dizzy while hiking. We got back down to the car & were having our usual post-hike tailgate party when suddenly I was so dizzy I couldn't keep sitting up & had to lie down on the bench for about half an hour.

All we can figure is that it was very smoky from wildfires as well as hot, and although we tried to stay hydrated the combination had a bad effect on our inner ears.

The way we imagine our lives is the way we are going to go on living our lives.

- James Hillman, Healing Fiction

* * * * * * * * * *

NARF and member of Deplorable Cultus since 1967


DesiringDragons
Lorien


Sep 22 2012, 6:03pm

Post #11 of 11 (79 views)
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I hope you're both all right. [In reply to] Can't Post

That sounds like a scary experience, especially happening out in the woods like that.

I hope you are both feeling better now!

 
 

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